Wednesday, June 22, 2016

Second surgery coming up, and other updates

To start this off, I'm writing this on my phone while laying down next to the 3 year old who won't let me out of his sight.

Probably because he woke up this morning, turned into Houdini and figured out how to get out of his room, and didn't find Mommy and Daddy in the master bedroom where he expected us to be.

Chris has moved into the in-law suite in preparation for the next surgery and radiation, and because it's cooler down there and there's no stairs for him to force his swollen joints down.

And that's where Christopher found us this morning, in the basement. Clearly I need to replace his door knob with one that locks, add some alarms to his door, or something so he can't easily go wandering around the house.

In the mean time the next surgery consult is tomorrow, with surgery expected next week. I'm going to be spending the vast majority of time going between my two men and attending to the needs they can't attend to themselves between toddlerhood and neck surgery.

In other news, I picked up Chris's new meds and they seem to be helping.

Got the Blazer registered, now we need to finish repairs.

I need to make changes to Christopher's room.

I still need to get to the doc, having prioritized getting transportation and getting Chris to the doc and getting meds and this little thing called paying the bills and eating.

Between the meds and transportation and medical costs, we're down to nothing again, and unfortunately we need to pay for things like parking fees at MGH, gas to get there, the final repairs on the Blazer, bills, food, and alarms for Christopher's room.

But we're getting there. We're gaining ground.

So that's where we are.

I've still got a GoFundMe set up, and PayPal to always works. and if you want to make other arrangements feel free to email me at or message me on Facebook.

Thanks all.