Monday, February 26, 2018

Well, that was inevitable...

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Surgical consult is on Friday. Then surgery in the next couple of months, if we can keep this up. Unless Chris dies first. Yes, we're ...
Thursday, February 15, 2018

Good news bad news

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The good? Got the bills of February paid. Also good: the borrowed vehicle is being signed over to us. The bad: we don't have the cash ...
Tuesday, January 30, 2018

Surgical consult is March 3rd

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Then it all snowballs from there. Thankfully electric is paid (thank you!) but it's almost the 1st and I need to pay the health insuran...
Thursday, January 25, 2018

Perfect example of how things are going

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Yes, I'm going to call them about this in the morning, AGAIN, and explain the situation, AGAIN. As a bonus our debit for our last fill ...
Monday, January 22, 2018

*starts writing* damnit

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*starts writing* damnit, the words aren't flowing. *Tries again* nope that's worse. Fine, I'll just come out and say it. I wa...
Saturday, January 20, 2018

What is it, and what does it mean?

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I was asked a pair of fundamental questions: What is your definition of disability? And... What does having a disability, or being disabl...
Thursday, January 11, 2018

Current status

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PCP tomorrow. Cardiologist Monday. My jaw frickin hurts. Why? Grinding my teeth so much. Even in my sleep. Because stress and worry. We can...
Wednesday, January 10, 2018

Life sucks

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So... Life. Current status: went to a guardianship hearing yesterday morning to give our consent to Christopher's great-aunt having tem...
Monday, December 25, 2017

Chris is undergoing a heart procedure tomorrow

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He wrote this earlier: "I'm in the hospital right now... In six days, the plan year resets, and I may not have had this heart thin...
Wednesday, December 20, 2017

This is not going well...

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Let me be blunt: everything is FUBARed. I'm apparently somewhat losing my mind. We don't have Christopher back for Christmas. Ther...
Sunday, December 10, 2017

Some good news... kinda...

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This was the week of many doctor's appointments. Endocrinologist, endocrine oncologist, and advanced cancer care team (surgeon, radiol...
Wednesday, December 06, 2017

Sorry guys, went dark for a couple of days...

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Sorry guys, I went dark for a couple of days. A couple of things happened within an hour of each other, and I desperately needed to get away...
Monday, November 27, 2017

Now we get CPS

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Let's get right to the point here: the NH version of CPS is currently screwing us over between a meddling teacher and an overzealous age...
Monday, November 13, 2017

I'm completely and utterly done...

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The hot water isn't recovering. Normally not a big, but I really needed a shower this morning, because I haven't showered in 5 day...
Friday, November 03, 2017

So the oncologist called...

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So the oncologist called... On the afternoon of December 7th Chris is scheduled for a consult with the Advanced Endocrine Cancer Treatment...
Wednesday, November 01, 2017

Why I started a new GoFundMe

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Some of you will have noticed I started a new, fresh GoFundMe. There's two reasons for this. One, the other had gotten incredibly cl...
Sunday, October 29, 2017

I really hate the first of the month...

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As fast as things are moving, some things aren't moving fast enough. Like getting Chris back to work... or my side project which has a...
Monday, October 16, 2017

When things start moving, they really move...

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Chris's endocrinologist called this afternoon. Chris is being referred back to the endocrine oncologist and rock star surgical team at M...
Monday, October 09, 2017

Cards on the table...

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So I've been in the middle of a side project for a while now. Years in fact. I haven't put much cash in, and where I have it's...

So the PET scan results came in today...

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So the PET scan results came in today... Here is Chris's explanation: Ok... preliminary radiologists report and notes showed up on...