Thursday, July 20, 2017

I just spent more on meds than rent

I just spent $1,900 on meds and $500 in durable medical equipment in 42 hours. It would have been $2,500 on meds but I only filled half a month's worth of one med in the desperate hope that the insurance company will update our max out of pocket as met within the next 2 weeks.

Yes, one of his medications is $1,200 a month and is required to keep him alive. Another medication is $1,000 a month, also to keep him alive. Those are both new as of the hospital stay.

I've paid less for working cars in good condition. I've made less a month while working full time than either of those meds.

On top of that Chris can't go back to work because his cancer doc/ endocrinologist is accelerating his surgery and radiation timeline to as fast as humanly possible and "you're taking the next cancellation". When you're teaching in one week increments and your students sign up for classes and take time off of work (often weeks and months in advance) you can't be on a cancellation list. While his work teaching made it possible for us to nearly pull ourselves out of the financial hole we were in (and now is being dug deeper and faster) he can't do that right now.

So we have increasing medical bills AND no income, and I can't work AND pay for child care for an autistic child AND a nurse for Chris.

And of course, we need to replace a vehicle sometime in the next 3 weeks so I can give the vehicle I borrowed back to the actual owner.

Oh, and pay for things like meds and appointments until insurance recognizes we met the out of pocket max...

So trying to keep Chris alive and get him treatment as fast as possible is financially destroying us. We'll still do it, but we need HELP. Lots of help. "$2,500 in new medical costs AND we need to buy a vehicle so we can get him to treatment AND we need to pay the normal bills so we have a place to live and electricity" help.

Please, anything would help.

I've still got a GoFundMe up and running, and PayPal to chris@chrisbyrne.com always work, and I can always be reached on Facebook.

Thanks all,

Mel

Saturday, July 15, 2017

Chris has been hospitalized due to nearly dying

Chris was taken to the ER Thursday night due to life threatening complications of his spreading and multiplying stage 4b endocrine cancer. It had previously spread to his lymph nodes, there are now strong indicators that it has spread further. He nearly entered a coma, and while he is currently stable it's a tenuous stability.

Ultrasound showed that what before was one tumor is now one tumor doubled in size (and growing fast) plus a second tumor.

CAT scan showed worrying shadows on his lungs.

He needs oxygen to sleep properly.

He needs aggressive cancer treatment, and now.

He can't work during this. He's still bedridden from the last surgery, AND he almost went into a coma.

On top of this, our son was recently diagnosed with a speech delay and being on the autism spectrum.

Between caring for both of them I can't work.

Our vehicle just blew a head gasket and needs replaced.

We have thousand of dollars left to reach the out of pocket max on our exchange plan (thanks ACA) which we will need pretty much immediately.

Yes, everything is going wrong at once and we are financially wrecked. 2 adults that can't work, special needs child, out of pocket max for medical care, logistics of aggressively treating cancer, replacing a vehicle, and those tiny bills that are rent, insurance premium, utilities, food...

Financially wrecked.

What's sad is we had almost, almost pulled ourselves out of the financial hole. Now we're facing several months without income and with many more bills to pay.

Anything would help. ANYTHING.

I've still got the GoFundMe up and going, and PayPal to chris@chrisbyrne.com always works, or messaging me on Facebook.

Thanks all. Wish I had better news.

Mel

Tuesday, July 04, 2017

Today I lift my glass, to celebrate our Independence Day

Today is not veterans day, or memorial day, or remembrance day... 

It is not a day of mourning, or of thanks, but a day of recognition, celebration, and exultation...

Today  is the day we recognize, and celebrate our independence, as the only nation in all of history founded on the notion, that the only form of legitimate government, is that which is based on recognizing, securing, protecting, and defending; the fundamental, inherent, and pre-existing, unalienable individual rights of man... 

... and deriving it's just powers from the same... 

... a government of the people, by the people, for the people...

A government of the people, by the people, and for the people, AS INDIVIDUALS...

...all created equal, and with equal and unalienable rights...

...Not to secure, protect, and defend, society, or collective, or even nation... 

...but the individual rights of man...

To my knowledge we remain the only nation so dedicated. 

Our revolution began April 19th 1775, at Concord and Lexington... 
...a day we in New England celebrate as Patriots Day...
Our independence was officially declared July 4th 1776... 
...the day we celebrate today, as independence day...
Our revolution was won, with the surrender at Yorktown, October 19th 1781...
...six years and six months, of mud, blood, and toil, from the day it commenced...
Our new nation was made whole, and strode forth under our Constitution, March 4th, 1789...

In the last 242 years,  millions of service men and women have fought, and over a million of them have died; fighting to secure, protect, and defend, those fundamental, inherent, and pre-existing individual rights of man.

...Every single day in this country...and around the world... 
...millions still fight for those rights...
...in whatever way they can, according to their own gifts and abilities, and their own circumstances, whatever they may be...
...whether by bullet and blade, by badge or by ballot... 
...whether by words on a page, or spoken on stage... 

For all of my brothers and sisters who have fought, and all who have died... 

For all who are still fighting today, at home and abroad...

Whether you're here today celebrating with family and friends...

Whether you're lost and alone out there...

... and if you are, rest assured we are coming for you brothers and sisters, to bring you home...

Whether we'll meet again the other side of the veil, and share this toast with those who live forever, on fiddlers green... 

Today, I lift my glass, in honor of those who fought...

Today I lift my glass in honor of those still fighting, at home and abroad...

Today I lift my glass in  honor of absent companions, and fallen comrades... 

Today, I lift my glass, to celebrate  our independence day.