Monday, June 13, 2016

This sucks less in some ways, and MUCH more in others...

First, the good.

June bills are paid, transportation has been acquired, doctors have been visited.

Now, the bad.

The transportation needs a couple of hundred in repairs in order to pass inspection.

Chris hasn't slept in 3 1/2 days, his lymphedema is so out of control it's making it almost impossible for him to move (so he doesn't unless it's to the bathroom 4 feet away), and the pain is so bad he's not eating properly or sleeping at all.

He's experiencing pain in joints he hasn't stressed, so much so that I had to go get him some ACE bandages with the last of our cash.

He's not absorbing his thyroid meds properly, so he's extremely hypothyroid. The doc is putting him on a new med with a different delivery mechanism for the thyroid hormone in hopes that will help.

Went to the endocrinologist for an ultrasound and biopsy on Thursday. 5 masses were identified, 4 on the side that wasn't operated on and one rather large one that is suprasternal. Between those and the lymphedema Chris is experiencing sleep apnea for the first time since 2012, when the big tumor was removed from next to his airway.

We've also been told his muscle atrophy is starting to be an issue so the doc is pushing for physical therapy, either at home (about $2k in equipment unless we get really, really lucky) or at a facility (costing much more and not covered by insurance).

So, Chris's sleep is out of control, his pain is out of control, hes not eating, his lymphedema is out of control, he's stressing joints just by living and being extremely hypothyroid is making all of this much worse.

And we're waiting for his next surgery, and while I would love to pick up the meds that would in theory help all of this, I can't because insurance is not approving them, and we don't have the cash to pay for the new one (at over $200 a month) out of pocket. I also can't pay for physical therapy equipment, though at least now I can transport it!

So... some things are better. We paid the bills and have transportation and we now know Chris will be going through another surgery which will be scheduled ASAP.

But Chris is much worse and almost unable to move or sleep or eat, we need to finish repairs on the transportation, and I need cash for gas and to pay out of pocket for new meds.

So that's where we are.

I've still got a GoFundMe set up, and PayPal to always works. and if you want to make other arrangements feel free to email me at or message me on Facebook.

Thanks all.