Sunday, July 10, 2016

16 days until the next surgery, and things are awful

The next surgery is on the 26th, and we're not doing at all well.

Chris is effectively bedridden (in that he goes between the couch, the bathroom, and the bed, which are all within 15 feet of each other) and I am absolutely exhausted. I didn't know it was possible to be this exhausted without a newborn in the house.

Christopher is doing well and healthy, so there we count our blessings.

The suprasternal mass in Chris's mass has quadrupled in size since the last surgery, and the surgeon is concerned. Blood tests don't indicate that the cancer has gone anaplastic  (thank God) so while this cancer is aggressive it is still very survivable.

After the next surgery Chris will be undergoing radioactive iodine ablation, and this time instead of the maximum non-emergency dose the dose will be titrated to account for his body mass. He will most likely be taking a dose that would be considered fatal for other people.

So as sick as he was last time... this time will be much worse. At least we have a basement in-law suite he can stay in through the isolation phase so he won't spend that time at the hospital.

Assuming we can keep up with rent and bills, of course.

His lymphedema and pain continue to be very bad, and he's still on expensive meds not covered by insurance, and we still need to get him an above ground pool and some exercise equipment so he can do something to help with the lymphedema.

I'm as depressed as I've ever been outside of hormonal causes, and need to get to the doc to get my meds adjusted, and that's rather high priority.

All our lives have revolved around cancer since right after Christmas and it's really taking a toll on everyone except Christopher, who isn't old enough to understand.

So that's where we are. Things are pretty damn horrible, but still survivable. We'll get through this.

We need help to make this month's bills and get Chris his equipment, and get him to his surgery at the end of the month (and hopefully a few nights in a hotel so I don't drive back and forth to Boston with a 3 year old several times in this process.

Anything you can give would be extremely helpful.

I've still got a GoFundMe set up and PayPal to always works.

Thanks all,