Saturday, March 05, 2016

Update on Chris

Chris is really, really sick.

If you see him on Facebook that might not be clear. He still rants and argues with the best of them.

However he's exhausted all of the time and sleep in elusive because of his pain level. His pain level was high to begin with; lymphedema makes it much worse.

He's also pretty much housebound because of immunodeficiency. Actually mostly bed bound. Most of the time when he's asleep it's during the day when Christopher and I are up.

Yeah. it's a pretty unhappy situation,

Because of the weird schedules and the pain I've become the default contact for the doctors and nurses, as well as handling everything inside the household, everything outside of the household, and of course child care.

It's a very high stress situation.

But we're going to work through it. We're in contact with the endocrinologist AND the surgeon (ever call the main number for a world-renowned surgeon and actually get the surgeon? I have.) Things are moving along.

We're still short some pretty necessary stuff, like access to a vehicle that's not an ungodly expensive rental and a lack of furniture for the basement for Chris's isolation. We'll get there too.

Thank you for all of your support. We'll still need more but we appreciate how quickly you guys have been able to prop up our finances.

Unfortunately we're nowhere near our goal yet, so I must keep asking for help.

I've got a GoFundMe set up, and PayPal using always works too.

Thanks all,